Finally Fistula Free

Hellooooo fistula warriors!

I have not been very active on here lately as I am going through a new health ordeal (adenomyosis and endometriosis! ugh!), and am navigating my way through all of that. I hope to soon be putting up some new stuff here, and have lots of ideas, so please stay with me!

I am excited to be able to share a new fistula project with you. Fellow fistula warrior Jen and I have been working on a project called Finally Fistula FreeOur goal is to provide a space where people going through the fistula nightmare can come to find success stories. We are currently collecting stories from people who have healed from their fistula, and want to share their journey with others. If you (or someone you know) has healed from a fistula and would like to share your story, please send us your success story at finallyfistulafree@gmail.com, we would love to hear from you and share your experience.

ffflogo

Art by Jennifer Doolan

Part of breaking through the stigma of this health problem is being able to talk out loud about it. Speaking from my own experience, writing about my journey in detail has been empowering, and has enabled me to help others. I encourage you to step outside of your comfort zone, even if that means just reaching out and joining a support group (I run a great one on Facebook: Fistula Support Group, and Jen runs a wonderful group for women: Abscess/Fistula Support for Women), or openly speak about what you’re going through with family or a close friend.

You can check out my full success story on our new blog here: Through the Tunnel of Doom and Back Again, and on the home page you will find Jen’s amazing journey, as well as our first contributor, Mary’s story. We hope you enjoy it, and that it brings some hope!

Be Back Soon!

In Solidarity,

Leah R. Chatterjee

3 thoughts on “Finally Fistula Free

  1. Hi, this blog has been extremely helpful during this experience. I’ve a fistula and after a seton I had a lift procedure.

    Everything seems to be in the process of healing, but every time I walk or am active for more than 30 min I get a lot of chafing on both sides. Did anyone else have this? Anyone has some tips for things to prevent it?

    Never had this problem before and it’s preventing me in really doing things.

    Thank you for any responses!

    • Yes, I had trouble with that. I used calmoseptine around the seton area, and folded a small square of non-stick gauze over the bands hanging out. I also just stuck to soft, loose pants. So glad you are finding the blog helpful, and thank you for reading! —leah

  2. I had numerous setons and then a lift procedure, think the chafing you mention is due to scaring and general tissue loss – mine all seems a different shape now and I have a sinus. I still use gauzes like I did when my abscess was active. This just helps when there is leakage and keeps things more comfortable. It is about adjusting to a new normal and finding ways to be comfy. Good luck. x

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